By Tania Shiminski-Maher, Patsy McGuire Cullen, Maria Sansalone
Early life mind & Spinal twine Tumors, the main whole mum or dad advisor to be had, contains exact and designated scientific information regarding either benign and malignant mind and spinal wire tumors that strike youngsters and teenagers. additionally, it bargains day by day useful suggestion on the way to deal with systems, hospitalization, friends and family, college, social and monetary concerns, communique, emotions and, if treatment isn't really winning, the tough problems with demise and bereavement. Woven one of the clinical info and the sensible recommendation are the voices of folks and youngsters who've lived with melanoma and its remedies. As many oldsters have already discovered, recommendation from "veteran" mom and dad could be a lifeline. acquiring a uncomplicated figuring out of subject matters similar to scientific terminology, how medications paintings, universal unwanted side effects of chemotherapy, and the way to paintings extra successfully with clinical group of workers can simply enhance the standard of existence for the entire relatives pain besides their baby. Having mom and dad describe their very own emotional ups and downs, how they coped, and the way they molded their kinfolk existence round hospitalizations could be a large convenience. simply understanding that there are different young children on chemotherapy who refuse to consume something yet tacos or who've widespread rages could make one think much less on my own. mom and dad who learn this booklet will come upon clinical evidence easily defined, suggestion to ease their everyday life, and instruments to be a robust suggest for his or her baby. contains broad assets and a pull-out scientific record-keeper.
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Additional info for Childhood Brain & Spinal Cord Tumors A Guide for Families, Friends & Caregivers
Her surgery was longer than normal because the tumor was embedded in her brainstem. There is the possibility that some small part of the tumor is still remaining. ” I was seized by an incredible urgency to see her face. I needed to see her. To prove to myself that all of this had been real. And to prove she was still here. She was in recovery. I stood over her and reached for her hand. Her head was turned to one side and I tried to ﬁnd her eyes. The room was cold and silent except for the beeps of the monitors.
I view life as much more fragile and precious than I used to. I think of myself as a tougher person than I was, but I cry more easily now. And sure, I still yell at my kids and eagerly await each September when they will be out of my hair for a few hours each day. But I hold them with more tenderness when they hop off the school bus into my arms. And I like to think that some of the people around us, who saw how suddenly and drastically a family’s life can change, hold their children a little dearer as well.
I remember two young fathers on our street, torn by the news, who wanted to help but felt helpless. My husband came home from the hospital late one night to ﬁnd that our lawn had been mowed and our leaves had been raked by them. They had found a way to make a small difference that day. Another time, a neighbor came to our house bearing a bakery box full of pastries and the message that his family was praying for our daughter nightly around their supper table. The image of this man, his wife, and his eight children joining in prayer for us will never leave me.
Childhood Brain & Spinal Cord Tumors A Guide for Families, Friends & Caregivers by Tania Shiminski-Maher, Patsy McGuire Cullen, Maria Sansalone