By Robert F. Weir (auth.), Arthur L. Caplan, Robert H. Blank, Janna C. Merrick (eds.)
In April 1982, an child boy used to be born in Bloomington, Indiana, with Down syndrome and a faulty, yet surgically correctable, esophagus. His mom and dad refused to consent to surgical procedure or intravenous feeding. The clinic unsuccessfully sought a courtroom order to strength remedy, and appeals to better courts additionally failed. the kid, pointed out as child Doe via the inside track media, accordingly died. The occasions in Bloomington turned the catalyst for motion by way of the Reagan management, the courts, and Congress that culminated in a federal coverage that makes failure to regard newborns with disabilities a sort of kid overlook. This e-book facilities at the public coverage elements of withholding therapy from significantly ailing newborns who're disabled. in particular, it offers with why the coverage used to be enacted and what effect it has had on health and wellbeing care staff, households, and babies. the various individuals to this ebook spearheaded the early debate on withholding therapy. Anthony Shaw's manhattan instances journal article in 1972 used to be the 1st to handle those matters within the well known press. the next 12 months, he released a comparable article within the New England magazine of medication. additionally showing during this similar factor of NEJM, was once the pathbreaking learn, coauthored by means of A. G. M. Campbell, on withholding therapy within the distinctive care nursery at Yale-New Haven sanatorium. each one of those articles promoted a lot public discussion.
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Extra resources for Compelled Compassion: Government Intervention in the Treatment of Critically Ill Newborns
Med. 322, 1012-1015. Perkins, R L. (1974) Abortion Pro and Con (Schenkman, Cambridge, MA), p. 229. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research (1983) Deciding to Forego Life-Sustaining Treatment (US Government Printing Office, Washington, DC), p. 217. Singer, P. (1979) Practical Ethics (Cambridge University Press, Cambridge, UK), p. 97. Strong, C. (1983) Defective infants and their impact on families: Ethical and legal considerations.
In the absence of such a program, parents and physicians will continue to be faced with the task of making life-and-death decisions for newborns in the midst of great uncertainty-including whether the family will be destroyed financially by costs of the medical care. Life-and-Death Decisions 31 References American Nurses' Association (1988) Guidelines on withdrawing or withholding food and fluid. Bartholome, W. G. (1988) Contested terrain: In the best interests of ... Hastings Cent. Rep. 18,39,40.
Lichtig, L. K, Knauf, R A, Bartoletti, A, Wozniak, L. , and Ellis, W. C. (1989) Revising diagnosis-related groups for neonates. Pediatrics 84, 49-61. Lyon, J. (1985) Playing God in the Nursery (W. W. Norton, New York), p. 237. McCormick, R A (1986) The best interests of the baby. Second Opinion 2, 18-25. Marshall, P. , Halls, H. , James, S. , Grivell, A R, Goldstein, A, and Berry, M. N. (1989) The cost of intensive and special care of the newborn. Med. J. Australia 150,568-573. Murray, T. H. (1985) Why solutions continue to elude us.
Compelled Compassion: Government Intervention in the Treatment of Critically Ill Newborns by Robert F. Weir (auth.), Arthur L. Caplan, Robert H. Blank, Janna C. Merrick (eds.)